First, thank you! I do feel better today. I let everything get to me yesterday, and after several good crying jags, then being able to get out of the house last night to do some grocery shopping I was able to pick myself up again. There is nothing like a solitary market run, to ground and center. Spoken like a true stay at home mom, no?
Anyway, I think I found a loophole in the denied claim on the prescription drug. Yay. And the other issue, I'm just going to continue to fight on principle. As someone told me yesterday, insurance companies are just like that, deny the claim, deny again, and keep denying until the customer gives up in frustration. I'm not giving up. Seems rather silly, its only a 200.00 claim, but dammit, we pay a lot for this insurance, and we shouldn't have to deal with this kind of crap. Not to mention 200.00 out of the budget for a family of six, is not spare change.
As for Kris,..
Roger attended a care conference yesterday concerning Krissy's plan of treatment. I hadn't said too much about the diagnosis, but I think I'm going to go into it a little.
When Krissy first got to the new hospital, they immediately started testing her for this rare disorder. Its actually an "offspring" disorder from a very well documented one (Paraneoplastic Antibody Disorder), and as I said, she is only the 15th diagnosed and treated case.
Basically, a tumor somewhere in her body, creates antibodies, which then attack a very specific region in the brain, causing all sorts of neurlogical problems. The treatment of course is to immediately remove the tumor, then start aphoresis treatments. Both were done, but she also needed a single treatment of cytoxin (chemotherapy) to attack the antibodies already in her brain causing havoc. It was thought at first, that the teratoma they found in her fallopian tube was benign, however a week later the pathology showed a malignant teratoma (or immature teratoma)
She is coming around and is more and more alert every day, but of course having to do deal with all sorts of other issues that crop up when one has been in the ICU for so long, like infections. They are hoping they can treat the infections over the course of the next week, then start her first round of chemotherapy immediately afterwards. And of course mixed in with all of this, Krissy is going to need a fair amount of various therapies, as she comes out of this, like physical, occupational, and a sort of memory therapy whose name escapes me at the moment.
So, on to my request..
I'm going to start making Llamie some chemo caps! And I want to start with Shedir from the knitty.com breast cancer awareness printable issue. I'm on a strict "yarn diet" (and doing very well!) but I have no Rowan Calmer in my stash, nor any Cascade Fixation Bulky (which I think, is an appropriate substitute) So does anyone have any single lonely balls of Calmer or Fixation Bulky in their stash that would swap with me for? Or donate to the cause? (I'm happy to pay first class shipping for donated balls of yarn!)
I'm committing myself to knitting one chemo cap for every ball of Calmer or Fixation Bulky that I can get my hands on, and whatever Krissy can't use, I'll donate either to the hospital where she currently is, or perhaps a local charity.
OR.. please, remember that it is Breast Cancer awareness month. Think about knitting a chemo cap or two yourself, and donating to your local charity.
